Thoughts on special toys?

Faith receives (or should I say I receive) 40 hours a month of respite care through the Navy. Hubby is active duty and this is one of the newer programs designed to keep me from going bonkers. Our 40 hours are split over 2 caregivers, each coming into our home once a week. Faith genuinely loves both her caregivers and this is a sanity saver for me. Ok, now you have a bit of background. On to the actual issue.

One of Faith’s caregivers has games and toys that she brings with her on her day. She brings her “special” toys to play with the children she cares for. It is a neat routine and gives Faith something special to look forward to. Faith does understand that these games and toys are only for use during the time that the caregiver is here and that they leave with the caregiver. Mostly. Except….

One game. Oh Faith loves it. She talks about, she cries for it. When the caregiver leaves, Faith melts down because she wants it. I mean really melts down. Hitting, kicking, biting, inconsolable melting down. Sometimes it goes on for almost an hour. During that hour I am physically holding Faith to keep her from hurting herself and me.

In other words, in exchange for my couple hours of respite care, I end up with both of us exhausted and emotional messes.

Not cool.

I know what you are thinking….why not just buy her the gosh darn game?

Our caregiver has asked us to not purchase duplicates of “her” games. I get where she is coming from. This is her bag of tricks that help keep the kids entertained while she is here. It’s special and kids look forward to it, and their time with her because they get to play with the items. If parents buy the same items, they lose the magic. They become part of every day life and are no longer special.

But…

I am going nuts here.

Would you buy the game? Just this one game?

Please weigh in!

Reward if found

There has been a feeling creeping in on me for a few weeks now. It has been coming closer and closer. Until this morning I didn’t have the exact word for the feeling.

I feel lost.

Not in a “Where did my GPS lead me this time” way. (Mine has a sexy Australian voice. I tend to just listen to him talk, not actually pay attention to where he is leading me…but I digress)

In a “where is Allison” kind of way.

I have spent so much time over the last 19 years being what I thought everyone else wanted and needed me to be that I have lost sight of what I want to be. Of who I am.

A mom? Well yes, I am a mom. I enjoy being a mother most of the time. But that is part of who I am, not who I am.

A wife? Well yes, I am a wife. I have a wonderful husband who is my partner in most every sense of the word. But that is part of who I am, not who I am.

A daughter? Well yes, I am a daughter. I have parents, step parents, in-law parents. I am certainly a daughter to many. But that is part of who I am, not who I am.

A sister? Cook? Housekeeper? Friend? Blogger? Tweet-a-holic? Teacher? Unemployed? Tired? Lupus patient? Failed gardener? Reader?

I have lost me. If asked to define who I am, I would only have a blank stare to offer as my answer.

If you find me, please leave a comment. Possible reward.

Baby Bjorn Active Carrier

 

 

Baby Bjorn Carrier Active Organic

Really not sure what to say about this carrier besides, it is a must for moms and dads.

When Faith was tiny, I had so many concerns about her development, both physical and social.  She survived a right hemisphere stroke, has hemiplegic cerebral palsy, and although we didn’t know it at that time, she also has autism. She would often suffer apnea episodes (stopping breathing) and seemed very removed from her environment. One of the things that both Jimmy and I felt was imperative, was keeping her involved in the world. The thought of her hanging out in a stroller being pushed ahead of me at knee level was not ok with me. Nor was her spending time hanging out in her car seat, away from touch and stimulation. She needed the extra protection, touch and movement that a pack carrier provided.

For us, the Baby Bjorn carrier was perfect! She was safe, secure and I could feel her breathing. She was kept at just about eye level. As we engaged people around us, so did she. Walking down Rainbow Row, shopping in the mall, running through airports, riding the ferry. We used our carrier almost daily for just about 3 years. It was incredibly comfortable for both Jimmy and I to wear, and it adjusted size in a flash. The fabric held up beautifully to literally years of wear.

When I look back at Faith’s babyhood, I truly feel that this was one of the best purchases we made.

www.babybjorn.com/us

Caring for the next generation

For us, keeping the next generation in mind has always been a top priority. That’s why we’ve launched a line of products made from organically grown cotton. With BabyBjörn’s organic products you keep your child happy and safe while protecting the environment.

The BABYBJÖRN Baby Carrier Active is one of the BabyBjörn favorites we’ve chosen to produce using fabric made from organically grown cotton. The baby carrier is sturdy and designed for anyone who leads an active everyday life. The baby carrier provides the proper pressure point relief thanks to the enhanced lower back support and wide, padded shoulder straps. At the same time your child is safe and sound in the baby carrier.

The baby carrier is easy to put on and take off without assistance. All adjustments are made from the front. As with all our baby carriers, it was developed in collaboration with medical experts to suit newborns optimally. 

 

 

Looking for ear piercing input

Our youngest daughter, Faith, has been asking to get her ears pierced. For most young ladies this is a rite of passage. Her age, almost 8, is usually a great time to get ears pierced. But we have an additional issue. Faith has multiple physical and mental disabilities. I find myself very torn right now. She has asked for something so common, so normal, so very ordinary. Should we? Shouldn’t we? Do you have any experience with ear piercing and disabilities?

Special Education Recertification

I’m feeling pretty nervous. At 1:30 today we are meeting with Faith’s school for her special education recertification. Right now we have amazing services. Really, we have even more than we had hoped for when we made the decision to enter Faith into school 3 years ago. Faith has made AMAZING progress in the last 3 years, and I truly feel it is due to the wonderful support services she currently receives. I have no idea what services they are looking to keep, change or drop.

What I do know, they want to change her eligibility category from “Autism” to “Multiple Disabilities”. I’m not sure how I feel about this.

Thoughts?

***** Update****

Here is the word for word from her new evaluation. Have I mentioned how much I love this school district? :)

With regard to continued Special Education services, Faith has been served under an Autism category for services. While the team agrees that this disability is valid, it does not reflect (in total) the additional and on-going physical health problems that impact Faith at school on a daily basis. Due to Faith’s on-going health difficulties in addition to her disability of Autism, the team recommends that Faith’s disability category be changed to that of Multiple Disabled. The team views that Faith has on-going health difficulties in combination with her disability of Autism. This combination requires a program and a level of support which cannot be met solely for a single disability.

 

 

Happy Dance!

I’m almost afraid to say this out loud, so I’m going to whisper…

(Faith slept all night long. In her own bed.)

For the first time. Ever.

Now, the cat woke me up twice so although * I * did not actually get a full nights sleep, it gives me so much hope for the future.

In celebration of this momentous occasion, I’m going to give you, my new readers, a chance to get an extra entry into my giveaway that starts on Friday.

How? That’s the easy-peasy part.

I’m going to give you a few hints on what I’m giving away, then you guess in the comments what you think it is.

You can guess as many times as you want, but only one guess per comment! You may submit guesses until 6/03/2011, Friday, at 8am PST. If you guess right, you will get one extra entry into the giveaway that kicks off on Friday. One extra entry per person.

Here is your hint:

***It is mostly orange and green, square-ish in shape, and it contains about a billion calories.***

This guessing game starts….NOW